‘Never too heavy,’ local youth perseveres, beats rare liver disease

‘Never too heavy,’ local youth perseveres, beats rare liver disease

By David Fleet dfleet@mihomepaper.com Goodrich — Each year, just after Thanksgiving but before the Christmas season, the Edenburn family proudly celebrates their own holiday on Nov. 30 each year, “Liver-versary.” While most calendars do not recognize the late fall day, for 16 year old Adeline Edenburn it marks the beginning of a remarkable road to recovery. At two-months old Adeline was diagnosed with biliary atresia, a rare liver disease that o…

With the participation of more than 120 doctors, biologists, specialists and medical interns, the Public Pensions of the State (PCE) held the Symposium on Rare Diseases. The objective of raising awareness and raising awareness about this type of condition was reported through a press release. The event presented the testimony of Sayra Rubí Barragán, mother of Leah Rubí, a nine-year-old girl with Cri Du Chat syndrome, entitled “One in 50,000, liv…