No autism registry, real-time data platform to be created, HHS says
- The National Institute of Health director announced plans for a new national autism data registry on Monday, but HHS denies creating a registry.
- This initiative is part of the Health and Human Services Secretary’s broader autism research effort seeking solutions.
- The proposed platform aims to gather health data from records, pharmacies, and wearables for research.
- An HHS official stated, "We are not creating an autism registry."
- Advocacy groups and researchers criticize the plan, raising significant patient privacy concerns.
54 Articles
54 Articles


Health and Human Services denies it will create autism registry
A ‘real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment strategies,’ one HHS official told The Independent
Health agencies “not creating an autism registry,” official says
A Department of Health and Human Services official said Friday that the health department is not creating an autism registry, contradicting an announcement made days ago by the director of the National Institutes of Health describing his plans to study causes of autism. “We are not creating an autism registry. The real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment …
HHS Says Federal Government Not Creating Autism Registry
The Department of Health and Human Services (HHS) said on April 25 it is not creating a registry for autism, after some advocates raised concerns about what the National Institutes of Health (NIH) director had described as a new autism registry. “We are not creating an autism registry,” an HHS official told The Epoch Times in an email. Dr. Jay Bhattacharya, director of the NIH, told a meeting on Monday that NIH’s real-world data platform, drawin…
Government Launching Database of Everyday People With Autism
The National Institutes of Health (NIH) is launching a registry tracking Americans with autism as part of a series of new studies by America's anti-vax health czar, Robert F. Kennedy, Jr, to discover the "cause" of the condition. As CBS News reports, NIH director and COVID truther Jay Bhattacharya told councillors that the studies, and the so-called "disease" registry that will be integrated into them, will glean data from a wide range of source…
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