US EditionWA advocacy groups, families react to potential national autism registry
- Advocacy groups and families in Washington state express concern about a potential national autism registry.
- Plans to study autism by collecting private medical data prompted these concerns.
- The National Institutes of Health intends to pull comprehensive private records from federal and commercial databases.
- Over five million adults reportedly live with autism in the United States.
- Many Autistic people fear data misuse, discrimination, and historical negative consequences from such registries.
19 Articles
19 Articles
Proposal to create federal autism registry stokes fear in disability advocates
U.S. Secretary of Health and Human Services Robert F. Kennedy Jr. speaks about a new autism study during a news conference on April 16, 2025. (Getty Images)This week, National Institutes of Health Director Dr. Jay Bhattacharya sent shockwaves through the autism community by announcing the creation of a “disease registry” to track autistic people. Nazi Germany used such a list to identify possibly hundreds of autistic children to be killed in exp…
'Reeks of eugenics': Administration’s autism 'registry' draws Nazi Germany comparisons
The Trump administration reportedly has plans to scrape your private medical data from sources like your doctor, your pharmacy, your insurance company, the lab that processes your bloodwork, your smartwatch, and your fitness apps—to create a “registry” of people with autism.“The National Institutes of Health is amassing private medical records from a number of federal and commercial databases to give to Health and Human Services Secretary Robert…
‘Reeks of Eugenics’: RFK Jr.'s Autism 'Registry' Draws Nazi Germany Comparisons
The Trump administration reportedly has plans to scrape your private medical data from sources like your doctor, your pharmacy, your insurance company, the lab that processes your bloodwork, your smartwatch, and your fitness apps—to create a “registry” of people with autism. “The National Institutes of Health is amassing private medical records from a number of federal and commercial databases to give to Health and Human Services Secretary Rober…
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