Racefor7 Successfully Concludes in Mangaluru, Raising Awareness for Rare Diseases

Racefor7 Successfully Concludes in Mangaluru, Raising Awareness for Rare Diseases

Racefor7 Successfully Concludes in Mangaluru, Raising Awareness for Rare Diseases Mangaluru: The first-ever edition of Racefor7 in Mangaluru, organized by the Organization for Rare Diseases India (ORDI) in association with Yenepoya (Deemed to be University) and Arunya Foundation, concluded successfully recently (last Sunday) at the Yendurance Sports Zone. The event witnessed an overwhelming response with […] The post Racefor7 Successfully Conclu…

Rare Disease Day is February 28 - Local Student Raises Awareness and Funds

Screen Shot of Elleaire Fore Website. Courtesy of Elleaire Lyons. February 28 is Rare Disease Day, with events in more than 100 countries hoping to raise awareness of diseases that affect fewer than 1 in 2,000 people, but directly impact more than 300 million patients, families and caregivers world-wide. Local Coronado High School student Elleaire Lyons gives her time and talent to raise awareness and money for a rare disease that is very close …

Rare but Real: Raising Awareness for Hypoparathyroidism this Rare Disease Day

(BPT) - Each year on the last day of February, people living with rare diseases—along with caregivers, healthcare professionals, advocacy groups, and others—come together to drive meaningful change and push