US EditionUniting women with X-linked disorders to prompt change
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Uniting women with X-linked disorders to prompt change
“We are more than symptomatic carriers, we have hemophilia, too!” a large group of women shouted when I attended the first National Conference for Women with Hemophilia in November 2018. As a woman with hemophilia, I know about the struggle for legitimacy in a male-dominated disease space. What I did not realize is that this is happening across many X-linked disorders. While inheritance patterns once were considered solely dominant or recessive,…
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