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News from Cure SMA

Stay current with all the latest and breaking news from Cure SMA. Compare headlines and media bias behind news outlets on stories breaking today.

In total, 9 have been published by Cure SMA which Ground News has aggregated in the past 3 months.

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Stay current with all the latest and breaking news from Cure SMA. Compare headlines and media bias behind news outlets on stories breaking today. In total, 9 have been published by Cure SMA which Ground News has aggregated in the past 3 months.

Ground News rates Cure SMA’s media bias as . . Ground News is unable to assign a bias rating and does not have ratings available from Ad Fontes Media, All Sides, and Media Bias/Fact Check. Cure SMA’s aggregated factuality score is Unknown. Factuality is assigned by combining fact check, credibility, and reliability ratings from Ad Fontes Media and Media Bias/Fact Check.

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Top Cure SMA News

New form of SMA treatment Evrysdi may give patients 'freedom'

United States · United States

New form of SMA treatment Evrysdi may give patients 'freedom'

A tablet formulation of Evrysdi (risdiplam) for spinal muscular atrophy (SMA) recently approved in the U.S. is designed to give patients a new option, a Genentech official said. “Evrysdi is the only oral, non-invasive disease-modifying SMA treatment, and the new tablet formulation may provide greater freedom and independence for people with SMA, thanks to simplified dose administration,” said Gregory Rippon, MD, vice president and chief medical …See the Story

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Rare Disease Month 2025

Rare Disease Month 2025

This content is password protected. To view it please enter your password below: Password:See the Story

Cure SMA Launches Advocacy Campaign to Secure New Federal Research for SMA

United States · United States

Cure SMA Launches Advocacy Campaign to Secure New Federal Research for SMA

To address the chronic health needs of individuals with spinal muscular atrophy (SMA), Cure SMA and the SMA community have launched a new advocacy campaign in support of federal research for SMA. Through the campaign, Cure SMA seeks dedicated SMA research funding through a federal research program managed by the U.S. Department of Defense (DOD). Learn more below about the SMA research campaign and how you can support it by signing onto a letter …See the Story

Rare Disease Month 2025: Driving Progress Through Research

São Paulo · São Paulo

Rare Disease Month 2025: Driving Progress Through Research

February marks Rare Disease Month, a time to amplify the voices of the 300 million people worldwide living with a rare disease—including the individuals in the U.S. impacted by spinal muscular atrophy (SMA). Throughout this month, and especially during Rare Disease Week (starting February 23rd), we’re committed to advancing research, raising awareness, and advocating for policies that improve the lives of those living with SMA. Research: The K…See the Story

Scholar Rock Submits FDA Application for Apitegromab to Improve Motor Function in Spinal Muscular Atrophy

Scholar Rock Submits FDA Application for Apitegromab to Improve Motor Function in Spinal Muscular Atrophy

Apitegromab is a muscle-targeted therapy for improvement of motor function in individuals with spinal muscular atrophy.See the Story

FDA and EMA Accept Applications for Higher Dose Regimen of Nusinersen in SMA

FDA and EMA Accept Applications for Higher Dose Regimen of Nusinersen in SMA

100% Right coverage: 1 sources

Applications are based on data from the DEVOTE study, which demonstrate the potential for the investigational higher dose regimen of nusinersen to advance the treatment of SMASee the Story

2025 Walk-n-Roll Registration Is Open

2025 Walk-n-Roll Registration Is Open

Cure SMA warmly invites you to join us at one of our 2025 Walk-n-Roll events—where community meets impact! This year, for the first time, you can register and start fundraising for both spring and fall events right now. Walk-n-Roll isn’t just a fundraiser; it’s a celebration of progress, hope, and togetherness. It’s a chance to gather with others who share a connection to spinal muscular atrophy (SMA)—to honor the strides we’ve made and push for…See the Story